Fibrosi Cistica Calabria: «Ancora nessuna risposta per i pazienti, situazione insostenibile»

Ancora nessuna risposta per i pazienti affetti da fibrosi cistica. Lo rende noto l’associazione Respirando la Vita – Fibrosi Cistica Calabria.

Nel centro di cura regionale, da mesi manca il fisioterapista respiratorio, da circa un anno il pediatra, e le due pneumologhe, ancora precarie, a gennaio rischiano di andare via: ancora una volta, l’associazione è costretta a chiedere delle soluzioni definitive con personale esperto, per garantire il diritto alla salute e all’assistenza dei pazienti.

A 3 anni dall’apertura del centro fibrosi cistica a Lamezia Terme, unico centro regionale per i malati, tutti i medici al momento sono precari o mancano, a eccezione del dirigente responsabile e della psicologa. Una situazione insostenibile per dei pazienti che hanno una malattia cronica per la quale non c’è cura. Basti pensare che, da quando manca il fisioterapista, alcune famiglie hanno dovuto accompagnare neonati e bambini molto piccoli nel centro più vicino: quello di Messina.

Secondo gli standard di cura europei, l’organico strutturato dovrebbe essere composto da 2 pediatri, 2 fisioterapisti respiratori e 2 pneumologi, esperti di fibrosi cistica.

A febbraio di quest’anno, l’Asp di Catanzaro ha bandito la mobilità per 1 pediatra, 1 fisioterapista respiratorio e 1 pneumologo, ma l’associazione non ha avuto riposte ufficiali sull’esito.

Nel frattempo, i decreti n. 111 del 10.08.2017 e n. 113 del 11.08.2017 del commissario ad acta per il piano di rientro dal debito sanitario, Massimo Scura, hanno annullato i precedenti provvedimenti facendo addirittura scomparire la previsione dello pneumologo che, al pari del pediatra e del fisioterapista, è di vitale importanza. Visto che non è stata ricevuta per gli impegni del commissario, l’associazione chiede il reintegro della figura.

L’associazione Respirando la Vita si è costituita l’anno scorso per tutelare i diritti dei pazienti. Ha incontrato i dirigenti della sanità, ha fatto un appello al ministro della salute e, anche prima come gruppo di pazienti e genitori, ha promosso iniziative per chiedere soluzioni strutturali.

Da settembre 2016 a luglio 2017, ha garantito la presenza del fisioterapista respiratorio pagandolo con le poche risorse a disposizione ed esaurendole quasi del tutto.

Per quanto riguarda l’aspetto economico, ricorda anche che, negli anni scorsi, il personale medico precario è stato formato con soldi pubblici, ma alcune figure hanno dovuto lasciare il centro regionale.

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